Welcome to the latest guideline update

Greetings and welcome to our new partner or collaborating organisations in this international PCOS initiative, which includes the update and expansion of the Evidence-Based Guideline for the Assessment and Management of PCOS, published in 2011.

The updated evidence-based guideline, being developed in accordance with world best practice process and in consultation with internationally recognised societies, researchers, clinicians and consumers is proposed to be the primary, international evidence-based guideline in PCOS.

More than 30 international societies have agreed to collaborate on this initiative and an overwhelming majority have signed a formal letter of agreement. A complete list of collaborating societies can be provided on request, email the guidelines Project Manager, linda.downes@monash.edu.


It is timely to provide a brief update on progress and remind collaborators of timelines and future opportunities for society input into the guideline. The diagram below depicts key phases of guideline development, anticipated timelines and opportunities for society input.

Progress to date

  • Extensive national and international stakeholder consultation has occurred via a survey to identify gaps (>3000 participants), topic priorities and outcome measures for inclusion in the guideline (>600 responses).
  • Five international guideline development groups have been formed to develop evidence-based or consensus (where evidence is lacking) clinical recommendations in the following theme areas:

o   Screening, diagnostic assessment, risk assessment,
life-stage and adolescents
o   Screening, diagnostic assessment and management of emotional
o   Lifestyle management and models of care
o   Medical treatment for features of PCOS
o   Screening, diagnostic assessment and management of infertility

  • Guideline development groups, informed by the surveys and consumer input, have determined topic priorities and clinical questions to be addressed in the guideline
  • Evidence synthesis is complete for prioritised clinical questions
  • International guideline development group meetings are in progress to consider evidence reviews and develop guideline content. The final meetings are in November in San Antonio.

Next steps are indicated in the figure above and include synthesis, public consultation (where your agreed appointed panels will be asked to review and provide feedback on the guidelines), modifications in response to feedback, submission for formal approval by the National Health and Medical Research Council and formal launch, followed by collaboratively developed international translation efforts and evaluation.

We look forward to working with you in this endeavour and will be in contact soon for the public consultation.

What’s coming up

Sept – Oct 2017 A website for guideline information is being developed.  We will notify you of the URL in the near future.
Nov 2017 – Jan 2018 Finalise guideline content
Dec 2017 – Jan 2018 Societies form PCOS special interest groups, comprised of 2 – 12 society members, in preparation for review of guideline content
Feb – March 2018 Guideline public consultation.  National and international stakeholder groups and societies are invited to review the draft guideline content and comment.  Feedback will be managed according to Australian National Health and Medical Research Council [NHMRC] processes.  For more information please visit: https://www.nhmrc.gov.au/_files_nhmrc/file/guidelines/developers/public_consultation_-_information_for_developers_v6.pdf
June 2018 Guideline referred to Australian National Health and Medical Research Council (NHMRC) for approval.  Please note:  NHMRC will be our only approving body for the guideline.
July 2018 and beyond Publish, promotion, dissemination, evaluation.  Develop education tools, health professional and consumer resources.  National and international society involvement in dissemination activities will be vital.

For further information about the PCOS initiative and the guidelines, please contact the Project Manager, Linda Downes, email linda.downes@monash.edu